A short break in our regular lingerie related posts to ask for your help.
"I’m in the need of help, more importantly, a new-to-me kidney… Since I am asking for help, here is my story – I’m not good at giving personal information out so sorry, please bear with me as it’s a bit long winded.
At the end of August 2015, I was feeling ‘off’ on a Saturday afternoon when my kids were with me (ages 5 & 8 at the time). I had a family member stay with my children and I was taken to the hospital.
My blood pressure was 257 over something ridiculous. I ended up being admitted to the cardiac care unit for 5 nights, crazy amount of blood work, attached to so many machines and on medication to keep my heart in check. Turned out I have what’s called ‘Conn’s Syndrome’, and only about 1 in a million people have this. Not really what I was hoping for….
Conn's syndrome, or primary hyper-aldosteronism, is a disorder caused by excess production of aldosterone, a hormone produced in the adrenal glands that helps control the amounts of sodium and potassium in the blood. Symptoms of Conn's syndrome include high blood pressure, headache, tiredness, excessive urination (often during the night), and a decrease in potassium levels in the blood.
Adrenal glands are supposed to produce between 315-420; mine were producing 1480 when I was tested in the hospital, thus excessive production. They’ve been tweaking my high blood pressure medication to reduce my levels and blood pressure, but the damage had been done, as this may have started when I was first pregnant with my son, in 2006.
As my heart is now more muscular than normal, as it had to work harder for so long, my kidneys have suffered in the process. From the cardiac care unit, I was then transferred over to the Renal Unit at Kelowna General Hospital, for another couple of days. The Kidney Foundation of Canada says it can take up to eight years in B.C. for someone with O positive blood to receive a transplant, which is what I have.
I also unfortunately do not have any family members who are able to help, as that they have either an O+/- blood match.
A GFR rating is where they establish your kidney function, anything less than 15 is considered kidney failure. An adult my age should be typically about 99 GFR, but according to my blood work taken January 30, 2017, mine is 6.
I’ve been holding my own for the last year and a half, and as I am not currently on dialysis, that means I am not on the waiting list as of yet. With my recent blood work, my doctor is no longer willing to hold off on this.
I am scheduled for surgery to have a catheter put in on February 14, 2017 and will be stating dialysis once it’s healed.
I am registered with St. Paul’s Hospital under both Andrea Nethercote and Andrea Topolniski. St Paul’s Hospital has a Living Kidney Donor Program, and is based in Vancouver BC. Phone numbers are 604-806-9027 or toll free at 1-877-922-9822.
If you, or someone you know of who could help me, even by re-posting this, it would be greatly appreciated. If you have any questions, you can either via a message thru here or you may email me at email@example.com I will answer to the best of my ability as I’m still learning about this.
Andrea (Nethercote) Topolniski"